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Treacher Collins Syndrome Resources

Below are a list of resources for individuals with Treacher Collins Syndrome.  Most of these resources are for South Carolina residents but, some are universal to the United States.  This collection of resources have been put together by families.  If you have any resources you would like to share with the collection please reach out to add it.  If you have any questions about the listed resources our family has navigated most of these and we are happy to help guide you through the process of applying or offer insight to our experience.    

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NORD- National Organization for Rare Disorders 

Treacher Collins Syndrome

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Treacher Collins Syndrome Facebook Pages 

Treacher Collins Syndrome 

Treacher Collins Mamas 

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Insurance 

TEFRA 

HIPP Program 

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