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Treacher Collins Syndrome
Treacher Collins Syndrome Awareness Day
May 28
When Hunter was born we couldn't find something that represented TCS that helped spread awareness. I think the closest thing to helping spread awareness was sharing the Wonder book. The book was something our families all related to. In 2022 I decided to help create that change so moving forward we have something to look forward to celebrate the beautiful differences TCS has to offer. Governor Henry McMaster officially proclaimed Treacher Collins Syndrome in the state of South Carolina on May 28. We have been able to have this wonderful day proclaimed every year since.
We strongly encourage you to reach out to governors in your state to request Treacher Collins Syndrome to be proclaimed on May 28.
Treacher Collins Syndrome Awareness Day 2024
Treacher Collins Syndrome Awareness Day will be celebrated at
The South Carolina Aquarium May 28, 2024 from 3-5 pm
American Theater, 446 King Street Charleston, SC 29403 at 5:15 for a picture in front of the marquee sign that will display,
"Treacher Collins Syndrome Awareness Day-May 28 Spread Kindness"
Please text or email CJ to reserve your spot.
Treacher Collins Syndrome Awareness Day 2023
Treacher Collins Syndrome Awareness Day 2022
On Treacher Collins Syndrome Awareness Day 2022 three families gathered in South Carolina at the South Carolina Aquarium to celebrate the first TCS Awareness Day.